Thursday, November 4, 2010

Extraordinary examples of Epilepsy- Alan Faneca

Our kids need examples of people living regular and extraordinary lives with Epilepsy!  Talk about it with your kids.  They need to know their lives will have value and be filled with accomplishements at whatever level that means for them. Our society only sees examples of Epilepsy that, frankly, are shocking and scary.  Let all of us who are living no fear, no stigma lives show others so we can change that view!  Thanks to Cardinals' Alan Faneca for being a part of erasing that stigma. Bob McManaman of the Arizona Republic speaks to him here- Arizona Cardinals' Alan Faneca Outside the Huddles

Rob Schumacher, The Arizona Republic

Thursday, October 21, 2010

The Whole Child Approach

Growing up with Epilepsy: Learning is an excellent read on how not to just focus on the seizures when loving and raising a child with Epilepsy. We want our children to reach THEIR full level of potential and this means supporting all areas of their development: the whole child.  I appreciate the teacher strategies provided and video on how to advocate for your child.

Saturday, September 25, 2010

Lose the Training Wheels Camp

"The mission of Lose The Training Wheels™ is to teach individuals with disabilities to ride a conventional two wheel bicycle and become lifelong independent riders"

Look a for a Lose the Training Wheels Camp coming to your area!

Saturday, August 28, 2010

Press release Epilepsy.com iPhone app

PRESS RELEASE: APRIL 28,2010 Epilepsy.com Launches New iPhone App to Help People with Epilepsy Manage Seizures, Symptoms and Treatment"My Epilepsy Diary" is Newly Launched as an Advanced Self-Management Tool Designed to Benefit Patients, Physicians and Future Research. Finishes reading at   Epilepsy. com Launches iPhone App

Friday, April 23, 2010

Giving meds to kids

Giving meds to kids- they gotta have em! You have tried it all and it still comes back out, running down the chin, the face or worst.   I have been giving both my kids meds for a long time in the mouth, ears, eyes and well... we won't go there.  It takes patience and it takes letting the kiddos have some control. It also helps to have a plan. Head on over to PBS kids for a great read on Medicine Giving Strategies