Saturday, September 8, 2012

"Witches Do Not Cause Epilespy" Global Awareness

The goal to change the stigma associated with Epilepsy is a global effort. Those members working within the Jerusalem-based Israel Epilepsy Association are educating patients and children throughout the country about Epilepsy and it's effects.

"Witches do not cause epilepsy"
By JUDY SIEGEL-ITZKOVICH
 
"Four years ago, then-director-general of Soroka (and now outgoing Health Ministry director-general) Dr. Eitan Hai-Am found a donor for an important way to reach children with epilepsy – the publication of a Hebrew-language children’s book called Gveret Epilepsia (Ms. Epilepsy). Written by Shai Dannenberg, colorfully illustrated by Ina Katzav and published by Orion Books, the hard-cover volume simply tells the story of how a boy in first grade named Shai was ostracized by his classmates for having epilepsy.

His teacher Ronit, noting his loneliness, tells her entire class the story of a land called Lomargishtov (don’t feel well, in Hebrew), which was inhabited by strange, tiny and transparent creatures, each of them connected to a different conditions, some of them infectious. One always had a runny nose, and another a sore throat. Ms. Stomachache was obviously just as unpopular, just like Ms. Flu. The last three were Ms. Diabetes, Mr. Headache and finally Ms. Epilepsy."
 

Read the full article here...Witches do not cause epilepsy

 


"What's this seizure thing anyway?"

As an Early Childhood Educator, I truly believe that children can cope when given the tools! We need to be aware that our children have questions about their disorder/seizures whether or not they verbalize those question! They want to know what is happening to them. Teaching with information that is age appropriate is GOOD!! Help your child become resilient...you can do it!

Take a look at this "What is this seizure thing anyway?" read it over with your child.  It' a great place to start.

Toys as triggers!

Something to think about for today! When shopping for toys for the upcoming season, there are some toys that can trigger seizure activity. We have to think about toys with flashing lights or video games. For my son, the LEAPSTER triggered staring episodes in him. Check it out! We always need to be aware of what might be a trigger and eliminate it. Here is a link on photosensitive seizures. Photosensitive Seizures

Thursday, November 4, 2010

Extraordinary examples of Epilepsy- Alan Faneca

Our kids need examples of people living regular and extraordinary lives with Epilepsy!  Talk about it with your kids.  They need to know their lives will have value and be filled with accomplishements at whatever level that means for them. Our society only sees examples of Epilepsy that, frankly, are shocking and scary.  Let all of us who are living no fear, no stigma lives show others so we can change that view!  Thanks to Cardinals' Alan Faneca for being a part of erasing that stigma. Bob McManaman of the Arizona Republic speaks to him here- Arizona Cardinals' Alan Faneca Outside the Huddles

Rob Schumacher, The Arizona Republic

Thursday, October 21, 2010

The Whole Child Approach

Growing up with Epilepsy: Learning is an excellent read on how not to just focus on the seizures when loving and raising a child with Epilepsy. We want our children to reach THEIR full level of potential and this means supporting all areas of their development: the whole child.  I appreciate the teacher strategies provided and video on how to advocate for your child.

Saturday, September 25, 2010

Lose the Training Wheels Camp

"The mission of Lose The Training Wheels™ is to teach individuals with disabilities to ride a conventional two wheel bicycle and become lifelong independent riders"

Look a for a Lose the Training Wheels Camp coming to your area!

Saturday, August 28, 2010

Press release Epilepsy.com iPhone app

PRESS RELEASE: APRIL 28,2010 Epilepsy.com Launches New iPhone App to Help People with Epilepsy Manage Seizures, Symptoms and Treatment"My Epilepsy Diary" is Newly Launched as an Advanced Self-Management Tool Designed to Benefit Patients, Physicians and Future Research. Finishes reading at   Epilepsy. com Launches iPhone App