The Whole Child Approach

Growing up with Epilepsy: Learning is an excellent read on how not to just focus on the seizures when loving and raising a child with Epilepsy. We want our children to reach THEIR full level of potential and this means supporting all areas of their development: the whole child.  I appreciate the teacher strategies provided and video on how to advocate for your child.

Lose the Training Wheels Camp

"The mission of Lose The Training Wheels™ is to teach individuals with disabilities to ride a conventional two wheel bicycle and become lifelong independent riders"

Look a for a Lose the Training Wheels Camp coming to your area!

Press release Epilepsy.com iPhone app

PRESS RELEASE: APRIL 28,2010 Epilepsy.com Launches New iPhone App to Help People with Epilepsy Manage Seizures, Symptoms and Treatment"My Epilepsy Diary" is Newly Launched as an Advanced Self-Management Tool Designed to Benefit Patients, Physicians and Future Research. Finishes reading at   Epilepsy. com Launches iPhone App

Giving meds to kids

Giving meds to kids- they gotta have em! You have tried it all and it still comes back out, running down the chin, the face or worst.   I have been giving both my kids meds for a long time in the mouth, ears, eyes and well... we won't go there.  It takes patience and it takes letting the kiddos have some control. It also helps to have a plan. Head on over to PBS kids for a great read on Medicine Giving Strategies

Teen Support

 

It's a challenge... getting a teen to come to terms with an epilepsy diagnosis. NO ONE wants to run towards it to embrace.   There is just too much judgement and not enough understanding.  The Epilepsy Foundation is working to change this. Check out Youth in Epilepsy and their Facebook page.  For my daughter, I just sent her the information and let her read it at her own pace.  She has really had to come acceptance at her own pace. We have to respect teens for where they are, give them the tools they need to be successful and show them the encouragement when they are ready to grow.

Myth Busters- Talk About It

November is Epilepsy Awareness Month so...
Head over and read about MythBusters at TalkAboutIt. Share with your firends...or anyone who will listen. Here are a few!

1. Don't put anything in our mouth if you see a grand mal seizure ( which is the most common type of seizure but NOT the only type of seizure)
2. You can't catch it !
3. It's an electrical discharge in the brain!